tag:blogger.com,1999:blog-35808401.post1708250707500389554..comments2007-03-21T04:54:51.116-04:00Shannonhttp://www.blogger.com/profile/00059052421403484650noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-35808401.post-9527246330400886222007-03-21T04:54:51.116-04:002007-03-21T04:54:51.116-04:00Dear Shannon, I'm a long time lurker on the mpip board, who very rarely posts. Just wanted to send you positive thoughts and let you know that your blog has been read across the other side of the world ( New Zealand) You have a huge talent for putting into words what most melanoma patients feel. I found your blog one of the most moving, honest ones I have ever read.Annettenoreply@blogger.comtag:blogger.com,1999:blog-35808401.post-30242404634840893252007-03-21T00:49:20.368-04:002007-03-21T00:49:20.368-04:00Hold onto hope because medicine is changing all the time. They have pretty good treatments now and who knows next year could be the kicker.You're young and you can do this.Don't give up even if it gets hard cause you never know what's around the corner.Your kids and hubby will be fine.You need to think about yourself and do what it takes to kick mels ass- MartineAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-35808401.post-43576482748191537792007-03-20T19:45:51.451-04:002007-03-20T19:45:51.451-04:00oh shannon - i am so sorry, i can only imagine how this must have definitely been like getting like a mac truck<BR/><BR/>i know you so wanted to hold onto the hope that MAYBE it wasn't really true..but then to find out it may be even more mets<BR/><BR/>i know that you are scared for ed & the kids - for what will be for them if the worst comes to pass, love them the best you can NOW b/c that's what's going to help them later that and the assurance that you are secure in your salvation and will be together again<BR/><BR/>for now focus on the fight - yes it will suck and yes it will be hard, but you lady are one bad ass mother fucker..you WILL get through it<BR/><BR/>there are tons of good IL2 tips on MPIP - i know charlie s has posted a long list<BR/><BR/>i hope the MRI is okay and you don't need rad. - just one more thing to add to your already full plate<BR/><BR/>i'll call soon - don't want to intrude - YOU call me whenever you want<BR/><BR/>i am so so sorry, this breaks my heart and scares me to death - I do not want to lose you, but I KNOW this can be done - we've seen people do it and gain years of disease free time <BR/><BR/>so put on your battle armour - remind me to send you the verses in the Bible about the armour of God - and kick some ass<BR/><BR/>love,<BR/>AmyAmy Busbywww.myspace.com/amybusbymelwarriornoreply@blogger.comtag:blogger.com,1999:blog-35808401.post-21568407061284032712007-03-20T19:40:16.017-04:002007-03-20T19:40:16.017-04:00You know, a big ugly cry complete with snorts and sobs and gulps and a little drool is not necessarily a bad thing. Let it out and then get all those fighters inside there ready.<BR/>I think melanoma picked on the wrong girl. <BR/>All the love and positive stuff I can muster is coming right at you!<BR/>K.Kim (AL)noreply@blogger.comtag:blogger.com,1999:blog-35808401.post-36421897795802718862007-03-20T16:40:48.458-04:002007-03-20T16:40:48.458-04:00My sweet friend,<BR/>I am at a loss for words and that rarely happens as you well know..my heart is breaking for all that is ahead of you and yet I know that you will somehow find the strength to do what you need to do. I concur with Carver about your children and how much to tell them or not tell them but I know tht kids always know "something" is going on and that is their biggest fear..it's "something" but they don't know what and only you and Ed can decide when and how much they need to know..and, like the others do let yourself feel what you feel and when you feel it..this is tough, too tough, so tough I can't even imagine what you are going through. I am here for you as always and I certainly wish I were closer to help in a concrete way. Love you and praying for you..big hugs every single day..suesuenoreply@blogger.comtag:blogger.com,1999:blog-35808401.post-14439694724041828602007-03-20T15:39:58.009-04:002007-03-20T15:39:58.009-04:00Shannon,<BR/>I've been following your story on the MPIP board for a while now. I'm so sorry to hear this latest news. As I told my dad when he advanced to Stage IV: "well shit, fuck, and goddamn". I know all too well the rage you're feeling right now. Go with it...it will help you in the days to come. I can understand your fear and that's ok too. There really is no right or wrong way to react to this news and the fear it brings with it. Surround yourself with those who love you, do things that make you smile, <BR/>and don't panic. You still have options. This isn't the end of the road by a long shot. Keeping my fingers crossed for good news about your scan on Thursday.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-35808401.post-78129254056365583472007-03-20T15:21:33.190-04:002007-03-20T15:21:33.190-04:00Dear Shannon,<BR/><BR/>I already responded to your post on the main board but after reading this I have to echo Melissa by saying that you need to give yourself permission to let it all out as well as being strong. I know you want to be strong for your children and Ed and I think you are incredibly strong but I believe that it's important to not feel like you have to be strong all the time. I know with younger children you can't totally lose it all the time around them but sometimes it's what doesn't get said that scares chidren the most. No one can decide for you what your kids can and can't handle. You know that better than anyone. I wish there was something tangible I could do for you. This totally sucks but my hope is that you'll find exactly the right combination of treatments for you.<BR/><BR/>As ever, CarverCarverhttp://www.blogger.com/profile/05968919406427737503noreply@blogger.comtag:blogger.com,1999:blog-35808401.post-88274703343557920752007-03-20T15:20:04.154-04:002007-03-20T15:20:04.154-04:00Shannon,<BR/><BR/>I'm so sorry to hear this!<BR/><BR/>Like Amy Jo, I'm praying for you too!<BR/><BR/>If we were close by we could do so much more to help! That is really frustrating, when you know you could do something to help, but too far away!!!!<BR/><BR/>Jenny Barton, AmyJo's sisAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-35808401.post-90183845365637498242007-03-20T15:06:54.282-04:002007-03-20T15:06:54.282-04:00Shannon,<BR/>Just had you on my mind an awful lot lately, damn girl, I hate this! I too am sending out some huge hugs, and big huge prayers for you all. If there is ANYTHING ELSE you need, you ask. Here for ya!<BR/>Mistymistyheifnernoreply@blogger.comtag:blogger.com,1999:blog-35808401.post-40330459464523494352007-03-20T14:45:23.358-04:002007-03-20T14:45:23.358-04:00DAMN!!!! I was hoping that you and Ed were out celebrating last night. That the PET didn't light up. That you could pretend all was normal for another month. SHIT. I am so sorry. I don't know what you are going through. I couldn't imagine. But I am giving you a great BIG cyber {{{{{HUG}}}}} right now. Stay strong when you need to, but give yourself permission to let it all out, as well. I just hate this. Please know we are all thinking of you. <BR/><BR/>melissamlittlenoreply@blogger.comtag:blogger.com,1999:blog-35808401.post-42661882792385708792007-03-20T14:18:41.103-04:002007-03-20T14:18:41.103-04:00Oh sweetie...I was so afraid of this when you hadn't posted yet. I'm really not a cusser but...shit, shit, shit. I don't even know what to say right now...just want you to know that I care & am thinking so much about you right now....praying over you right now!!!!!!!<BR/><BR/>Love you -- BIG HUGS!!!!!!!<BR/>Amy JoAnonymousnoreply@blogger.com